Holy crap, it’s getting cold. An Arctic blast has brought icy winds and temperatures in single digits. It’s almost like winter’s coming or something. I’ve had to pull out my thick winter duvet and search through my cupboards for warm jackets and trousers. They don’t get a lot of use in Brisbane. Winter here usuallyContinue reading “Brace Yourself!”
Category Archives: Charcot-Marie-Tooth
Brace Yourself!
Stacks on! I had my first trike stack yesterday. I was riding along the road, and turned left into a driveway to get back on the footpath. The driveway had a gap in the easement for gutter flow and the front wheel got caught in the gap and I went over sideways, resulting in aContinue reading “Brace Yourself!”
Brace Yourself!
Keep On Trikin’ It’s summer in Brisbane which means it’s scorching hot and revoltingly humid. Some days stepping outside feels like being slapped in the face with a hot, wet blanket which envelopes your body in a soggy, warm embrace. It’s also the wet season. We haven’t experienced a proper wet season in years andContinue reading “Brace Yourself!”
Brace Yourself!
New Year 2022!! Wow! Well, here we are in 2022, and it’s February already! How did that happen?!! I intended to be more regular with my blog posts, but the last few months have been a bit rough. I slouched wearily and warily into the new year. Fearing more of the same. All I couldContinue reading “Brace Yourself!”
Brace Yourself
International Day of People with Disability Today is international day for People with a Disability. I had wanted to write something amazingly intelligent, uplifting and funny to celebrate the day. But the truth is, I’m not doing great right now. Not working, my future, the future of the world, the state of politics etc. It’sContinue reading “Brace Yourself”
Brace Yourself
Courage Is Not The Absence Of Fear Today marks the 20th anniversary of an event that changed my life On August 27th, 2001, I had tendon transfer surgery on both my legs. The tendon transfer operation took strong tendons that were pulling my feet inward (due to weak muscles on the outside not being ableContinue reading “Brace Yourself”
Brace Yourself – Getting stuff done
This week I got some stuff done! YAY!! My anxiety and depression (they are a double act) sometimes lead me to put things off. Days pass then weeks, I put things off, and avoid tasks. I get overwhelmed and it all snowballs while I fall into a downward spiral. The slump took hold recently andContinue reading “Brace Yourself – Getting stuff done”
Brace Yourself
I have Wee Cankles I was born with a hereditary neuro-muscular disease called Charcot-Marie-Tooth disease (CMT), pronounced (shark-o mah-ree tooth). The name is unimportant in terms of understanding the disease. It is named for the 3 Doctors who first described and wrote about it in the 1800’s, Dr Jean-Martin Charcot, Dr. Pierre Marie, and DrContinue reading “Brace Yourself”
Peppa's Place 